The aim of research in the NHS is to improve your care and treatment from sound evidence, gained from well designed and ethically approved studies. All treatments have, at some time, been the subject of research and every year thousands of people agree to become participants in research studies, contributing to these advances in healthcare. At HHFT we offer opportunities to take part in multi-centre research projects across many specialities, and also support our clinicians to develop and lead their own research projects.
Research: Information for patients
How is the quality of research ensured?
We all have a right to expect high standards, to have confidence in, and benefit from quality research. The Department of Health has set up guidelines to make sure that all research is run to the highest standards and this is the UK Policy Framework for Health and Social Care Research. At HHFT the Research Department is responsible for ensuring that we meet these standards when conducting research. Before any research study can start it must have regulatory approvals in place including review by an independent research ethics committee. The Research Department have to ensure that all permissions have been granted before the study opens at this site, and that it is appropriate to conduct the research within our Trust.
For more information visit the National Institute for Health Research website.
Patient/public involvement in research means research that is done with or by the public and not to, about or for them (Involve www.invo.org.uk).
It is possible that you may be asked to take part in a research study. There are many varied types of research involvement; you may only be asked to complete a questionnaire, or to have blood tests, or to take medication. Whatever your level of involvement, your participation is always voluntary and you are able to withdraw from a research study at any time, without giving a reason, and without it affecting your normal treatment.
For more information and for independent advice about being involved in a research study you can contact the Customer Care Service on 01256 486766 or at email@example.com.
Wessex Health Lines is a patient facing website designed to let people know about studies in the Wessex region.
Patient/public engagement in research means information and knowledge about research is provided and shared.
Examples of engagement are:
- an open day at a research centre where members of the public are invited to find out about research
- raising awareness of research through media such as television programmes, newspapers and social media
- sharing the findings of a study to research participants, colleagues or members of the public
Why become involved in research?
You might decide to become involved with health research for a wide variety of reasons.
- Personal knowledge and experience which you would like research(er/s) to take into account
- A chance to give something back and help influence research to benefit others
- To learn more about your condition and gain experience and confidence through working with others
- Help bring about improvements to health and social care services and treatments for yourself and others
- Help bring about improvements to the environment, health and wellbeing of your local community
One of the strongest motives people give for getting involved in research is to work with researchers to help bring about improvements to health and to improve existing services and treatments.
Why is it important for patients and the public to be involved with research?
We are all potential users of health services. There is an important distinction to be made between the perspective of patients, carers and service-users and those of people who have a professional role (such as doctors, dentists, physiotherapists, occupational therapists, nurses etc).
We need a range of perspectives to ensure research in the NHS is as effective and as relevant for patients as possible. By sharing your knowledge and experience you can make a real difference and help to change patients’ lives.
For more information contact us on Research.Team@hhft.nhs.uk.
If you are a patient or a member of the public and would like to know more about getting involved and participating in research locally, please visit the UK Clinical Trials Gateway website to see if there is a study in your area.
For more information on the studies currently open to recruitment at Hampshire Hospitals Foundation NHS Trust please refer to our Open Studies page.
To find out more about research, visit the National Institute for Health Research’s web page 'how we involve patients, carers and the public'.
To explore opportunities for public involvement in research, visit the National Institute for Health Research’s web page People in Research.
You can find out more about research and about general use of patient information on the Health Research Authority (HRA) website.
As an NHS organisation we use personally-identifiable information to conduct research to improve health, care and services. As a publicly-funded organisation we have to ensure that it is in the public interest when we use personally-identifiable information from people who have agreed to take part in research. This means that when you agree to take part in a research study we will use your data in the ways needed to conduct and analyse the research study. Your rights to access, change or move your information are limited as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study we will keep the information about you that we have already obtained. To safeguard your rights we will use the minimum personally-identifiable information possible.
Health and care research should serve the public interest which means that we have to demonstrate that our research serves the interests of society as a whole. We do this by following the UK Policy Framework for Health and Social Care Research.
If you wish to raise a complaint on how we have handled your personal data, you can contact our Data Protection Officer on firstname.lastname@example.org who will investigate the matter. If you are not satisfied with our response, or believe we are processing your personal data in a way that is not lawful, you can complain to the Information Commissioner’s Office (ICO). Further information about how the Trust protects your personal information and contact details can be found here